There are a lot of cool people in the world with narcolepsy or other types of chronic illness writing encouraging blogs. Since I am not the only one, I thought it would be helpful to share other blogs with those who found my blog and are interested in what else is out there. The blogs are listed below with a short description.
Julie Flygare is the first person with narcolepsy that I learned about through the internet. She is the founder of Project Sleep, a non profit organization dedicated to provide sleep disorder help through raising awareness of sleep health and sleep conditions. She is also a leading narcolepsy spokesperson, published author of Wide Awake and Dreaming: A Memoir of Narcolepsy, and an awesome blogger. I am continually inspired by the work she does.
Ilana Jacqueline started her blog at age 22 and has been writing faithfully for six years. She shares her humbling and heartfelt experiences learning to cope with chronic illness. She gives straightforward and practical advice about a wide range of issues related to living with chronic illness.
Gina shares her experience of minimizing her narcolepsy symptoms through diet and lifestyle changes. She has a lot of narcolepsy experience and has also helped her son and mom mitigate their symptoms. She shares info about dieting, the science behind her methods, and helpful recipes.
Tove’s blog is focused on parenting but she does share about her experience living with narcolepsy. She also shares her love for creativity and creating comfortable spaces.
This blog is written in dutch by Sandra. She shares about her experience with narcolepsy and how she is learning to manage her illness as life changes. She is a board member for the Dutch Association of Narcolepsy.
There are also helpful websites with supportive information for people with narcolepsy. If you haven’t already check out:
Narcolepsy Network is a national patient support organization. They have resources on treatment, support groups, symptom management and more.