Narcolepsy is a burden just like my old maiden name was for so long. I have been married for almost two and a half years, and I just changed my last name from Burden (my maiden name) to Anderson (my married name). I majorly procrastinated on the arduous task of changing my name. I am …
There are a lot of cool people in the world with narcolepsy or other types of chronic illness writing encouraging blogs. Since I am not the only one, I thought it would be helpful to share other blogs with those who found my blog and are interested in what else is out there. The blogs …
During the summer of 2016, I went to southern Utah with the Anderson family. I have the view from Angel’s Landing in Zion National Park in my living room, and I am so grateful that I got to see that view with people I love. But when I remember that trip overall, I remember how …
Suffering and hope. Life and peace through the Spirit. Calling out Abba Father. No condemnation. Romans 8 is full of goodness. I was 15 when Romans 8 first captured and broke my hardened heart. It is now 10 years later, and the Lord is still using that chapter to call me home to Him. I’m …
Humility. What a word. What a strange and rare and beautiful thing. The Lord started putting the word humility on my heart this past Sunday morning. I have been reading A Loving Life by Paul Miller slowly for the past few months. This Sunday morning, I decided I’d better continue on my journey in the …
When I am honest with myself and slow down, I realize that I have a disability. Narcolepsy, jaw pain, and Raynaud’s disease limit my ability to cope with life everyday. Without medication, I cannot drive. With medication, I still have to be very careful and aware of my narcolepsy symptoms. Going on long car rides …
I do enjoy writing. There is freedom in writing and letting my thoughts run free. I forget the things I love. I get stuck on duty and responsibility and all the “shoulds” and “shouldn’ts.” My husband is good to me. He helps me see things a little more clearly when I get stuck. I’ve felt …
Ignorance is bliss One of my first exposures to understanding narcolepsy was a Youtube video of a dog with narcolepsy. The video shows the dog experiencing loss of muscle of control and inaccurately describes the symptom as an inability to stay awake at any given moment. I used to not know how misleading these media …
Narcolepsy: my complicated and invisible disorder. Read More »
I have loved the idea of being an advocate ever since I understood the meaning of the word. The thought of supporting those that cannot support themselves, creating practical and positive change, and shining light on issues that people are blind to inspires and motivates me. But advocacy can also seem vague, uncertain, and tiresome. …
Life is mysterious. The clouds are bright today and the wind is fierce. There isn’t always a best way, and that is a blessing. Lord, what do you want me to write today? There is so much I could write about. I feel grateful that on a blustery night and day, I have had shelter. …
